2,150 people in the NHS area covering Barnet had been waiting 13 weeks or more for an autism diagnosis at the end of 2023 reports Will Grimond, Data Reporter

Focus on a container of stationary at the back of class for schoolchildren — Across the country 136,000 people were referred to NHS autism services in 2023 – (Credit – Radar)

Thousands of patients are waiting months for an autism diagnosis in north central London, figures show.

A think tank has said a “radical rethink” of autism and ADHD assessments and treatments is needed if the NHS is to keep up with demand.

The National Institute of Health and Care Excellence has set a target time of 13 weeks for those with suspected autism to be assessed.

But figures from NHS England show around 2,150 people in the area covered by the NHS North Central London Integrated Care Board had been waiting at least this long for an autism diagnosis at the end of 2023.

Of these, 26% were under 18.

This was up from the same point a year before, when 1,310 people were waiting for 13 weeks or longer, 41% of them children.

Location data is not available for a small percentage of patients across England, meaning there may have been more patients last year than this figure suggests.

Across England, referrals for autism have been on the rise for both adults and children.

Analysis from the Nuffield Trust – a think tank – shows the 172,000 open referrals in December is the highest figure ever, and a five-fold increase since 2019.

Thea Stein, chief executive of the Nuffield Trust, called the rise in demand “unprecedented”, saying the NHS is struggling to meet it.

She urged: “We are only now beginning to recognise just how many people are neurodiverse. The challenge is that we have an obsolete health service model in place to deal with this avalanche of need.”

“We need to urgently understand the different elements of this complex picture and find a whole system approach across education, society at large and the health service,” she added.

Across the country 136,000 people were referred to NHS autism services in 2023, with 1,045 of them in north central London.

In 2022 there were 112,000 new referrals.

The Nuffield Trust also point to a growing number of people receiving treatment for attention deficit hyperactivity disorder – ADHD – with a 51% increase in the number of people receiving medication for the condition in 2022-23 compared to 2019-20.

However, it cautions there is currently no national data on ADHD assessments, so the exact scale of the issue is difficult to gauge.

An NHS spokesperson said: “The NHS is fully committed to supporting and improving the lives of those with ADHD and autism which is why we have published new national guidance to help local areas manage the 50% increase in referrals they have seen.

“NHS England has also begun important work into investigating challenges in ADHD service provision and last month launched a cross sector taskforce alongside the Government, to help provide a joined-up approach for the growing numbers of people coming forward for support.”

Saffron Cordery, deputy chief executive at NHS Providers, said improving the quality of care and access to services for autistic people “must be a priority”.

“That includes making sure that patients, carers and families are involved fully in decisions about their care. We need to make sure too that the full range of services on which autistic people rely are funded properly and prioritised nationwide,” she added.

She said trusts need greater government investment to deal with the increased pressure they are under.

No news is bad news

Independent news outlets like ours – reporting for the community without rich backers – are under threat of closure, turning British towns into news deserts.

The audiences they serve know less, understand less, and can do less.

If our coverage has helped you understand our community a little bit better, please consider supporting us with a monthly, yearly or one-off donation.

Choose the news. Don’t lose the news.

Monthly direct debit

Annual direct debit

£5 per month supporters get a digital copy of each month’s paper before anyone else, £10 per month supporters get a digital copy of each month’s paper before anyone else and a print copy posted to them each month. £50 annual supporters get a digital copy of each month's paper before anyone else. £84 annual supporters get a print copy by post and a digital copy of each month's before anyone else.